Essay Selected for Forthcoming Dating Anthology
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antique vintage typewriterI am pleased to announce that my essay, “Pick Ups at the Dog Park,” has been selected for publication in a forthcoming anthology entitled, Rendezvous in the Rough: Essays from the 21st Century Dating Trenches. Dealing with topics such as online dating, sexting, and dating after divorce, the collection explores what has and hasn’t changed in how we date and find love in the 21st Century.

Edited by Danita Berg and MacKenzie Jennings, both English Professors in Florida, the anthology will contain witty, wry, raw, insightful, and humorous essays on the modern, technology-enhanced dating experience. Which is funny because absolutely no technology, modern or otherwise, is involved in my story. None whatsoever. Nevertheless, it’s a funny little tale.

As always, it’s an honor to have my work published, and I absolutely love the title. Don’t you?

The anthology has a tentative publisher and is expected to be released sometime in 2016. I will keep you posted as I learn more.

Until next time,
Cynthia

 

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Hello Middle School
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back-to-schoolThis week Katie started 6th grade. My daughter is in middle school. How did that happen? I know it’s a cliche, but time is simply flying by, galloping forward and gaining speed. My baby is no longer my baby, or even my little girl. She is growing and changing, gaining skills and independence. She is also back in our home school district.

I wish this fact didn’t worry me. I wish it didn’t make me anxious and tense, but unfortunately it does. To say that Katie and I have not had a positive experience with this school district would be a monumental understatement. Not once but twice, the district repeatedly suspended Katie for nothing more than having autism. Both times, after countless meetings (and lost work days), I was forced to threaten a lawsuit. Katie was then transferred to another district mid-year. As a result, Katie has spent five out of six years of grade school in two districts other than our own.

Yes, you read that correctly. She spent less than half of kindergarten and roughly half of third grade in our district. The rest was spent elsewhere.

I’m scared this fall will be round three.

I don’t want to put my child through that stress and disruption again. I don’t want to put myself through that mess again. And yet, this district offered a far better placement option than the one we were in. Last spring the choice felt like Catch 22—and it still does.

I didn’t want Katie to transfer back to our home district and yet here we are. Part of me wants to throw in the towel and just give up. The other part can’t believe I just wrote that. The concept is unthinkable. How could I give up on my child?

But I can’t escape the fact that I’m exhausted. I’ve grown weary of fighting the same fight. The details change but the underlying issue remains the same: although tasked with providing an individualized education to children with special needs, schools prefer a one-size-fits-all approach. My child, despite my best efforts, is falling through the cracks. I can’t let that happen.

Helen Keller and Anne SullivanYears ago a friend said I needed to find Katie’s Annie Sullivan, the teacher who found a way to reach Helen Keller. Will Katie’s new teacher, Mr M, fill that role? I hope he can, but there is no way to know. All I can do is make an informed decision and wait to see what happens.

You’d think after eight years of infertility, after years of waiting for something approaching a conversation with Katie, I’d be comfortable with this state of being. I’m not. Waiting never gets easier.

And yet here I am again—waiting for a miracle. Or perhaps simply a repeat of past events. Or possibly some unknown middle ground.

I don’t know what the future holds, but one thing I do know: I will never, ever give up. I don’t know how long it will take, but someday, somehow, I will find the program that meets Katie’s unique educational needs. Even if I have to create it myself.

Until next time,
Cynthia

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What Happens at Camp Arroyo Stays at Camp Arroyo
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Katie departs for Camp Arroyo

A seriously excited Katie departs for         Camp Arroyo

Katie survived summer camp. She had fun but I suspect it was rougher than outdoor education camp last fall. Which is strange because they had no sensory tools at outdoor ed. At Camp Arroyo, which is where the Exceptional Needs Network (ENN) holds its summer camp in conjunction with the Taylor Family Foundation (TTFF), they had horseback riding, bounce house, pool, glider, plus a yurt devoted to art projects. They even had a zip line that Katie rode four times!

This should have been enough to get Katie through three days, but apparently it wasn’t. Even though Katie’s in-home therapist and I prepared a “fact sheet” and specified what types of sensory input Katie needs (e.g., swinging, jumping, spinning, running), the aide gave Katie lots of shaving cream and play doh and only used the bounce house once. So by time I picked her up, Katie was exhausted and really, really twitchy. As in, barely holding it together. Sigh. Why do so many people, including special needs aides, find sensory integration so confusing?

On top of this, despite repeatedly clarifying that summer camp would be different than outdoor education camp, Katie may forever define camp by the benchmark of Camp Loma Mar. As we drove to summer camp, she repeatedly asked to go to the beach. I could tell she was getting agitated but wasn’t sure why. By the time we reached Camp Arroyo, she was prickly and anxious. We met her aide and carried her things to Pine Cabin. Camp Arroyo has some seriously nice cabins, but Katie was unimpressed. She climbed into her bunk and cried. “It’s too dark,” she said over and over.

2002_camp_arroyo3The cabin wasn’t dark, so the aide and I began to run through a list of possible issues. Only later would I connect the dots and realize Katie was trying to describe shady Camp Loma Mar, nestled in the redwoods, close to the beach.

Katie finally calmed down and we walked to the art yurt. She immediately began decorating her bag and said, without looking up, “Mommy go bye bye.” I extracted a hug and said goodbye, wondering what the next three days would bring.

By that evening I was a bit anxious. I regretted not asking Katie’s aide for a text to let me know all was well after the rocky start. But there was no way for me to contact her, so I had to let it go.

Other than horseback riding, swimming, and the zip line, I have no idea what Katie did at summer camp. I went out to dinner twice, watched several movies, wrote, and spent a day in Pescadero with Nate, eating green chili soup and enjoying the beach. It was fabulous to get a break from the demands of single parenting.

Camp ArroyoWhen I picked her up on Saturday, Katie was asking to see Mom but didn’t want to leave. I could tell she was tired and twitchy. When I asked the aide how it went, she shrugged and gave a noncommittal answer, focusing instead on Katie’s zip line adventure. I let it go. I’m guessing there was some behavior but if they don’t want to tell me, then I’m happy to ignore it too.

Katie and I went to the park four times that afternoon/evening so she could swing, plus she took a long nap and played in the water twice. By Sunday she had recovered and was asking to return.

I think Katie’s summer camp experience was a lot of new stuff all at once with an aide who didn’t know her well. But she managed to have fun and stayed the whole time. I consider that success. Plus I scored a new sitter! A college student met Katie at camp and “fell in love.” She lives nearby and offered to sit. So all in all, it was a great three days for both of us. I’m grateful to ENN and TTFF for making it happen.

Until next time,
Cynthia

 

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The Things We do For Love
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SONY DSCThe other day I was driving home and saw a man in the middle of the street. It wasn’t a lazy, neighborhood street, but a congested four-lane arterial. He was cutting across mid-way between intersections, weaving through traffic. It was late Sunday afternoon and I suspected drugs or alcohol were involved.

The man stopped halfway across, in the turn lane, and looked back. He was talking, maybe even yelling. That’s when I noticed the young woman standing on the sidewalk. She was shaking her head, clearly unwilling to step into oncoming traffic. The guy said something, annoyed, then turned away with a shrug. I saw the fear and uncertainty etched on the woman’s face as I drove past. When stopped at the light, I looked in my rear view mirror and saw the woman step hesitantly into the street, following the man.

I sighed and shook my head, not all that surprised. How many times do we let others talk us into things we know are bad, possibly even dangerous, ideas?

Far too often, I suspect.

On one level, we know it’s something we shouldn’t do, but we ignore that nagging little voice and tell ourselves it’s okay, everything will be fine. Just this once. We justify our actions however we can. When things go wrong, as we know they will, we blame someone else, pretend we don’t care. But we do. We always do.

We say we did it for love.

We forget it was our choice to follow the bad advice, to step into the street without a crosswalk. It was our choice to ignore our internal warning system.

But as I know all too well, when a loved ones addiction gets thrown into the mix, we constantly over-ride that pesky little voice. We distract ourselves. We distrust ourselves, and eventually learn to distrust others as well.

Holding handsOnce the alcoholic or addict [insert preferred problem] is out of our lives, we begin listening to ourselves again. Yet it’s hard to unlearn those old coping mechanisms, those bad habits. Sometimes it’s difficult to discern when it’s safe to trust.

Living with an autistic child has taught me who I most need to trust. I’ve learned how essential it is to ignore all the voices “yelling” at me and focus instead on my child and my internal wisdom. There is so much the experts simply don’t know about autism spectrum disorder. So much left to learn. And even if we knew everything there was to know about autism, no one knows my daughter as well as me. No one is more of an expert on her than me.

As I look ahead to middle school in just a few short weeks, I need to remember this advice. No matter what others might do or say, like every special needs parent, I am the only expert that truly matters. I need to trust my instincts and go with my gut.

Always.

And yes, I do it for love.

Until next time,
Cynthia

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Katie’s at Camp Arroyo!!!
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Camp Arroyo - LogoYesterday I dropped Katie off at Camp Arroyo. To say she was excited would be an understatement.

I was pretty excited too. (Still am.) Unlike most single parents, I don’t have an ex-spouse/partner who provides me with free and convenient childcare on a regular basis. As a result, I get very little time off from parenting my autistic child, and when I do, it almost never involves more than a few hours here and a few hours there. Plus it’s not cheap. To have a three-night break is an extraordinary and priceless gift.

Thank you Exceptional Needs Network and Taylor Family Foundation. You have made one single mom very, very happy.

I’m off to play….

Until next time,
Cynthia

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Dreaming of Camp Arroyo
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sleeping-bag-59653_640In October 2014, my daughter Katie attended outdoor education camp at Camp Loma Mar, near Half Moon Bay, California. It was a big deal, and not just because it was my ten-year-old’s first time in a camp setting. Katie has autism, and I feared any number of dreadful things might happen while we were apart. The camp even offers water sports such as kayaking, and despite knowing everything about it from campingfunzone.com and telling her about it, I still am in constant fear. (You can read about Camp Loma Mar Part 1 here and Part 2 here.)

My fears, however, were totally unfounded. Katie had a terrific time at Camp Loma Mar. So much so that for months all I heard was, “I want to go to outdoor ed camp. I want to go to outdoor ed camp….”

Unfortunately for Katie, outdoor education camp is a one-shot deal. But there was another camp that she could attend: the summer camp run by the Exceptional Needs Network (ENN) and the Taylor Family Foundation at Camp Arroyo in Livermore. Until then I hadn’t been sure if Katie was ready for a sleepover camp. but after her success at Camp Loma Mar, I was determined to secure her a spot at Camp Arroyo.

It is not easy to obtain a spot at ENN’s coveted summer camp for disabled kids. Demand completely outstrips supply, with special needs parents coming from all over the San Francisco Bay Area for one of 70 spots. Nevertheless, I was determined to get Katie in and give her another camp experience to help build on her growing independence. After a great deal of digging, combined with a little luck, I learned that if I truly wanted a spot in one of the two summer sessions, I would need to spend most of the night in front of the Livermore Library to ensure that I was close enough to the front of the line. That was an adventure in and of itself, but at 9 a.m. on a Saturday morning last spring, I secured Katie a spot.

Camp ArroyoFor four months Katie has been patiently waiting for summer camp. I’m not anxious this time, and that is a welcome relief. Both Katie and I have grown since Camp Loma Mar.

Next week Katie will spend three glorious days (Wednesday afternoon through Saturday morning) at Camp Arroyo. She will ride horses, splash in the pool, sing round a campfire, and gaze at the stars. Meanwhile I will be doing whatever I damn well please. A day trip to Pescadero for green chili soup and a walk along the beach is planned. Perhaps a movie. Beyond that, I have no idea. Whatever strikes my fancy.

I suspect both Katie and I will have a blast next week, each in her own way, in her own space. And that’s a really, really good thing.

Until next time,
Cynthia

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Handing Off and Easing Up
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ThumbupSometimes it takes an accident or serious illness to make you re-evaluate your priorities. As many of you know, in December 2014, I developed an infection in my right thumb. My thumb was so swollen that it couldn’t bend, and as a result, I discovered all the countless uses for an opposable digit. It took six weeks, five medications, four rounds of antibiotics, three doctors, two trips to urgent care (with my autistic daughter in tow), and one hand specialist to reduce the swelling and remove the infection.

Then the real work began.

After more than five months of twice-weekly physical therapy, I can at long last write with a pen again and type on the computer with something approaching my normal speed and accuracy. As for strength and stamina, that’s still a work in progress, but it’s improving. I can’t tell you how grateful I am to have a (more or less) fully functioning dominant hand again!

But back to my original point about re-evaluating priorities. In January, while I was in the thick of the infection drama, a friend suggested that maybe my body was asking me to slow down. Perhaps I needed to consider what I could “hand off.” I contemplated dropping the open mic that I host. After the first few well-attended months, the event had fallen into a lull. Two months off due to holiday conflicts didn’t help matters. Trouble was, I wasn’t sure I could find anyone to take over the open mic.

Instead, I decided that I would make a big push on promotion, and if something didn’t change, I would drop the event. This would be the sixth one, and it was time to sink or swim. It made me sad to think of ending the open mic, but it was also strangely liberating. I didn’t want to waste time on things that weren’t going anywhere.

Perhaps it would have happened anyway, or perhaps the additional promotion paid off. In either case, the open mic took off. We’ve been packing the venue ever since. This lead to new writing contacts, which in turn lead to a new home for Storied Nights: An Evening of Spoken Word, as well as the beginnings of a literary nonprofit, which should simplify my promotional efforts greatly. Which is kind of funny because it was the promotion and social media tasks that I wanted help with from the start.

Isn’t it funny how things work themselves out?

ChecklistI am slowly discovering that this past six months, maybe even the entire year, is about coming to grips with the fact that I have far too many tasks on my to do list. When the receptionist at the hair salon says, “Do you EVER get time off?” and my answer is, “Not really,” then something needs to change. I want to be a human being instead of a human doing. Raw Malaysian Hair bundles are being sold at many places now and I visited one recently instead of going to the salon, and I am happy that I am taking steps to a different outing.

In August I’ll be taking a closer look at what I can hand off. As a working single mom, I have less wiggle room than most, but I do have some. I’d planned to revise my memoir then, but perhaps it’s more important that I relax and mentally “clear the decks” before my daughter begins middle school. I suspect both of us would benefit from taking a break and then easing into fall….

What do you think?

Until next time,
Cynthia

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Late Bloomers
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Balloons_in_the_skyIt’s a sad truth, but kids on the spectrum don’t often get invited to parties, birthday or otherwise. Over the years I’ve grown used to this difficult state of affairs–even as it continued to frustrate and sadden me. These children may be late bloomers developmentally, but in most other ways they are the same as every other kid, and what child doesn’t love a party?

No one loves a party more than my eleven-year-old daughter Katie. Katie has few friends, so a lack of invitations didn’t surprise me. But she does have seven cousins. Invitations to their parties would have given Katie more than enough opportunities to practice birthday party etiquette. But Katie hasn’t been invited to her cousins’ parties for years. Like I said, it’s difficult, not to mention isolating.

For a long time, the only parties Katie attended were either the ones I hosted or else neighborhood parties. (Fortunately my wonderful neighbors have been more than willing to tolerate Katie’s sometimes difficult behavior and comment on every improvement, no matter how minor.) Last year, however, things began to change. In addition to her own birthday party and three neighborhood ones, Katie was invited to a classmate’s 10th birthday party as well as to a large barbecue at the home of one of my friends. (You can read about that party here.) She did great at both events.

This spring, Katie was invited to two more birthday parties. One was a swim party and the other was held at the local bowling alley. Another swim party occurred this month.

Tyler's Birthday Party 2015These parties are populated with autistic children and their families. To the casual observer, they might look like any other party, but they differ in subtle ways. Usually the adults are the only ones holding a conversation. No one thinks twice if a child refuses to participate, hogs a swim toy, insists on the blue bowling ball, or needs a break outside. It’s low key and relaxed. Everyone has a great time in their own way, which is how it should be at every party.

Sometimes, everything is wonderful until in an instant, it’s not. No one bats an eye or judges the child or the parents. Instead we smile and say, that happened to us last week….

I cannot explain how amazing these parties are. Perhaps it’s because Katie and I waited so long for the invitation. Or maybe it’s just that everyone who attends belongs to my strange, new tribe called autism.

It was a long time coming, but I’m tremendously grateful for these parties, these kids, their siblings, and their parents. Together, we are growing, learning, and most importantly, having fun on our crazy but inspiring autism journey.

Until next time,
Cynthia

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Welcome to Summer School, Part 2
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school-busVictoria never did call back. Nor did anyone from the Pleasanton School District, although a district staff person recognized Katie and brought her to her classroom. “Immediately,” the teacher would emphasize later. “They brought her to me immediately.”

Yeah, but how long did Katie wander before she was found? The thought terrifies me, but at the same time, I know it may not be the last time that Katie is lost and needs directions. Did she seek out help?

That afternoon Katie seemed withdrawn and possibly even scared, but that could be my projection. She repeated over and over, “Help. Help please.” Whether she said that when lost or was practicing in the event it happened again, I will probably never know. But I do know that she remained on campus, apparently searching for her classroom in the unfamiliar school. I’m proud of her for that.

Another mom would later report that she saw district staff arguing with aides from Katie’s classroom. The staff person insisted that I must have dropped Katie off without waiting for her aide. “No,” the aides said. “Cynthia wouldn’t have done that.”

No parent of a barely verbal autistic child would have done that and yet two schools districts both assumed that’s exactly what happened. This tendency to blame the parent (or worse, the child) bothers me. Neither Katie nor I had anything to do with the “incident.” Plenty of other people may be at fault, but Katie and I did nothing wrong.

When they could no longer blame me, the districts instead blamed the bus driver. But when I drove Katie to school the following day, her 1:1 aide was no where to be found. After a five-minute wait, the teacher showed up, claiming the aide was waiting at the back of the school at the bus drop off zone. Which begs the question: so how come the aide wasn’t there the day before?

No one in either district is taking responsibility for the “incident.” The next day Katie was switched to a taxi, along with the other children who rode that particular bus. I hope the driver wasn’t fired, but I suspect he was. Which isn’t really fair, because in all the chaos, how was he to know who was or wasn’t Katie’s aide? And it wouldn’t have been an issue if the aide was present.

BalanceWhy wasn’t the aide waiting?

After mulling it over, the bottom line is this: mistakes happen. People screw up. I cannot protect Katie from this, as much as I might like to. But I’m happy to know that once she stepped off the bus and realized she was alone, Katie kept her cool, She didn’t bolt and she didn’t panic. Instead she found an adult she knew and asked for help using the few words she had. I need to trust that she will do that again, because a next time will undoubtedly come.

It’s a balancing act, this dance of holding on and letting go.

A part of me wishes the “incident” had never happened, but Katie learned from this experience. I did too.

Until next time,
Cynthia

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Welcome to Summer School, Part 1
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school-busBack in April 2014, when Autism A to Z was making its public launch, I produced a special Storied Nights: An Evening of Spoken Word that focused on autism spectrum disorder. The year before I’d been published in Chicken Soup for the Soul: Raising Kids on the Spectrum, and as a result had met four amazing Bay Area autism moms: Katherine Briccetti, Jennifer Bush, Michele Bissonnette Robbins, and Laura Shumaker. I asked if they’d be willing to read their stories with me at the event and all readily agreed. Former Livermore Poet Laureate Connie Post (and fellow autism mom) joined us.

A few days before the event, Jennifer had to cancel so I ended up reading her story. It’s about the school (temporarily) losing her toddler. It was a struggle to read the story aloud because I too had had such an experience when my daughter was in preschool. As I read the story I could feel the panic and anxiety bubbling beneath the surface and was grateful that phase of my autism journey was over. I never wanted to feel that way again.

Chicken Soup AutismLast week Katie started summer school. It would be her final few weeks of fifth grade, her final few weeks with her teacher, Ms. Nav, along with her aides and classmates. In August she will transfer back to our home district. After 2 1/2 years in Pleasanton, it will be hard for me to say goodbye. I’m not sure if Katie grasps the significance.

The transportation to summer school had been rocky from the start. Still, I was surprised when a new bus driver arrived Monday morning at a new time. Annoyed, but not concerned. This kind of thing happens a lot. That afternoon a taxi brought Katie home. What was going on?

The next morning the new bus driver could shed no light on the situation. As we waited for Katie to settle into her seat, I noticed liquid about to trickle down the steps. I bent lower and saw a pool of liquid beneath the older boy seated in the front row. With a shock, I realized the liquid must be urine. The driver saw where I was looking and shrugged. “Yeah, he does that. It’s his thing.”

As I stared at him, he said defensively, “I’ll wipe it up.”

He unbuckled his seat belt and said to my daughter, “Great job! You buckled yourself in. I don’t need to help you.” He sat back down, buckled up, and said “Got to go.” Then he shut the bus doors in my face and drove away.

All morning I thought about the pee. Would the children have to step in it when they departed the bus? Had the boy wet his pants? Did he have a change of clothes at school? Or had he exposed himself to the other children?

The more I thought about it, the more annoyed I got. But I wasn’t sure where to complain. Turns out, I didn’t need to worry. Around noon I received a call from Victoria at the school district. “Umm,” she said, “there’s been an … incident at school.”

Given Katie’s history, I thought for sure Victoria was calling about a behavior problem. Instead she told me that Katie had been found wandering alone at the summer school campus. For a second I was relieved, but then I grew concerned. “How did that happen?”

“I thought you could tell me,” Victoria said. “You dropped her off.”

“No I didn’t.”

“Of course you did. The teacher said most of the parents drive.”

“That may be true of the parents in Pleasanton, but since she transferred there, Katie has either taken a bus or a taxi to school.” Transportation that YOU pay for. How could you not know this?

“No she doesn’t.”

“I beg your pardon?”

“My notes say that you drive her.”

“I’m sorry, but that’s not true. Katie takes a taxi during the school year and switches to a bus for summer school.”

Victoria continued to argue with me. The surreal conversation helped keep my panic at bay. Finally I said, “Look, I put her on the bus this morning. You can check with them. And by the way, there was a kid who apparently urinated on the bus.”

This snapped Victoria out of her loop. “What?”

I explained what I saw and she said, “That’s not okay.”

“I didn’t think so either. But are you telling me on top of that this guy dropped Katie off without her aide?” I could feel the anxiety building. Summer school is located on a major multi-lane arterial. Had Katie wandered off campus? Tried to cross the street to reach Starbucks, land of the yummy strawberry “milkshake?” Ventured into a strange place, alone and barely verbal?

“Umm, I’m not sure what happened. I’ll get more facts and call you back.”

To be continued…

Until next time,
Cynthia

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