What Happened to August?
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ChecklistSometimes I find that as a special needs parent I focus so much on what needs to be done in the future, that I often lose track of how far we’ve come. I was given a little reminder this past week.

Like most special needs kids, Katie attends summer school. Every district does summer school in its own way. In Dublin, when the regular academic year ended, there were two weeks off, then six weeks of summer school, five days per week, then two weeks off again, and then the new school year started. This meant Katie never had more than two weeks off from school year-round. It sucked for vacation planning but made the often rough transition back to school much easier. For three years, this was our schedule. As a single mom, I loved it.

The Pleasanton Unified School District (PUSD) does things a bit differently. When the academic year ends there is only a single week off in June, then five weeks of summer school, four days per week, and then an entire month off before school starts again. When I agreed to transfer Katie to PUSD, I didn’t think to ask about summer school. When I found out near the end of the school year, my heart sank. The four-day week was bad enough for a working parent, but a month off? This may simplify vacation planning, but it complicates nearly everything else—at least for me.

Katie and I got through the month. I didn’t get nearly as much work done as I wanted, and we never took the elaborate vacation I fantasized about last spring, but the month went just fine. Last week I complained to a friend about how August just vanished, how I couldn’t seem to get work done, couldn’t seem to get much of anything done. She reminded me that I’d been home alone with an autistic child. Did you have a nanny? No. Did you enroll Katie in summer camp? No. Did you pray to get through the month in one piece? Well, umm, no. Not even a little.

It was that last “no” that gave me pause. Because I used to pray—really, truly pray—to make it through a two-week break with my daughter. Other moms would talk about all the fun things they had planned for their kids’ time off and I would pray that we both survived intact. I had to white knuckle it like an alcoholic in the early days of sobriety, one day at a time. It made me feel terribly guilty until a few other autism parents confessed to feeling tremendous relief when their kids returned to school, and I realized I wasn’t the only one. Our kids thrive on structure and predictability, two things school provides in spades. It’s hard to replace that when school is out because real life is simply not that predictable.

But this summer I hadn’t prayed at all, hadn’t even thought of it. I’d been busy making a launch schedule for my new business, and then beating myself up when it didn’t happen the way I’d planned. Hmmm. Somehow I went from praying to survive to enjoying time with my child to expecting to work while I was with her. Yeah, I’d say that was progress. A whole lot of progress I managed to overlook.

Suffice it to say next summer I will do things differently. Either I’ll take the month off with Katie and read books and write or I will hire a nanny or maybe even consider summer camp. She’ll be ten by then. It might work. I’ll figure it out next year. But one thing I know for certain. I will not be praying to make it through the month.

Until next time,
Cynthia Patton

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Creativity and Disability
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Welcome to another Tuesday with TED. Today we have Alberto Cairo of the Red Cross speaking about the disabled and how “There Are No Scraps of Men.”

In this powerful talk, Alberto tells the moving story of why and how he found humanity and dignity in the midst of war.

What are your thoughts on the disabled and what they can achieve after listening to this talk? How does this relate to creativity?

Until next time,
Cynthia Patton

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Remembering Pearl
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wood heartI went to law school with a woman named Pearl. I didn’t know her well, even though she may have been in my small section. I honestly can’t remember. I didn’t pay much attention to Pearl because she was “old.” At 22, what seemed old was probably younger than I am now.

Although I didn’t pay much attention to her, Pearl was nevertheless memorable—and it wasn’t due to her “advanced” age. She was memorable because of her look, which was so out-of-step with the time. In the late 1980s, when hot rollers and big Dallas-style hair were all the rage, Pearl wore her graying hair in a vintage Marlo Thomas flip. I imagined her back-combing the crown like my mom did when I was a child and then shellacking it into place with a can of Aqua Net. It was hair that would not be out of place on “Mad Men.”

Pearl’s clothes were equally dated, and the combined effect rendered her virtually invisible, an obsolete model. She was totally forgettable—or so I thought.

In the twenty-plus years since law school, I have never forgotten Pearl. It seems she left an indelible imprint on my mind. At our 20th reunion, I learned that Pearl had died only a few years after graduation. I was stunned and saddened at the news. How could Pearl be gone?

I can’t help but wonder if she regretted the time spent in law school. Would she have gone if she had known? More importantly, did she enjoy practicing law? Did it change her as it changed me? What was it like for her, my brain mutters, what was it like?

There is so much I would ask Pearl today. It bothers me a little, this obvious change of heart. Do I want to ask these questions because she is gone or because I’m older and no longer discount people due to age?

Whenever I think of Pearl I can’t help but also think of my girlfriend Faye, who is an ovarian cancer survivor. After she attended the ninth (and last) funeral of the women in her cancer support group, Faye said to me, “Life is short. It’s too fucking short to waste time.”

It is. Life is short. Just ask Pearl, or Faye, or those nine dead women.

I was reminded of this fact once again when I saw an article my friend Jennifer Simpson shared: 30 Questions to Ask Yourself Before You Die. Jenn suggested using them as writing prompts or questions to ask when fleshing out fictional characters. I think they would work great for that, but I also think they are important questions to ask yourself—whether you are approaching 30, 40, 50, or even 60 and beyond.

Ask yourself the questions and then go out and live. Even if it’s something “crazy” like studying drama, writing a book, attending law school in your 40s, or starting your own law firm a few months shy of your 50th birthday. Do something you’ve always wanted to do and tell yourself it’s for Pearl.

Go on, I double dare you.

Until next time,
Cynthia Patton

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What Fear Can Teach Us
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Welcome to another Tuesday with TED. Today we have fiction writer Karen Thompson Walker talking about “What Fear Can Teach Us.”

Karen tells the story of the whaleship Essex and shows how fear propels imagination, as it forces us to imagine possible futures and determine how to cope with them.

What frightens you? How does fear flavor your imagination? What stories do your fears tell?

Until next time,
Cynthia Patton

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I Am NOT Trayvon Martin
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Trayvon MartinI’ve been thinking a lot about Trayvon Martin and the Zimmerman trial. Rolling the facts around in my head and searching for a different, more equitable outcome. No matter how I slice it, an innocent teen got shot because a man with a gun was scared and paranoid, and that just seems wrong.

Now well-meaning whites are walking around wearing I Am Trayvon Martin tee-shirts, and while less offensive than the fact that an innocent teen was killed, I still find this a bit, well, offensive. Because no white could possibly understand what it must feel like to be black.

How do I know this? Let me tell you a story.

My first job out of law school was at a boutique firm in Sacramento. Except for the support staff, I was the only woman. I didn’t really give this much thought when I accepted the job. I’d always been a woman who hung out with males.

On the first day, a partner insisted I not lean on the counter when speaking with my secretary. “A client might get the wrong impression,” he said, gesturing toward my flat, white-girl butt, tastefully covered in a knee-length skirt and pantyhose. I wasn’t sure how to read his comment, but I noticed his concern didn’t include my male coworkers who were leaning just like me.

Later that same week, he called me into his office and said now that I was an attorney, I should “stop associating with the women.”

He meant the legal secretaries, but I wondered how he thought I could stop associating with myself.

I knew the rules, so I didn’t complain, barely even acknowledged his remark. But that night I sat alone in my apartment and cried.

For months I felt vaguely ashamed, but eventually I bloomed where I was planted. I worked long hours, memorized sport statistics, and swore up a storm. I wrote articles and spoke at conferences. I forced myself to laugh when the men joked about their wives.

I’d been with the firm for almost two years when it was announced that we would have a firm retreat. The partners brought in a facilitator who interviewed each of us. He and I spoke for a long time. On the first day of the retreat, the facilitator said, “Obviously Cynthia might have a different viewpoint because she’s the only woman.”

The men looked confused, and several insisted that I was not the only woman. There were plenty of women at the firm. The facilitator laughed and asked if there was another female attorney he was unaware of.

The male attorneys looked around the conference table, and I could tell it had never occurred to them—any of them—until that very moment that I was the only female. How was that possible? I stared at the facilitator, who flashed me a bemused look and shrugged. These men, these smart, talented, funny, dedicated attorneys, had never noticed I was an outsider.

The facilitator asked them to imagine what it must be like for me. Most of the men looked stunned; a few stared at me with new-found respect. One insisted that he would love being the only male in a firm full of women. “I’d eat it up,” he bragged.

The other guys shot him disgusted looks, and then the moment was over—for them.

That night I lay in bed and pondered how it was possible that a truth I had lived with every minute of every day for two solid years had not even registered with my white male coworkers. They simply hadn’t noticed, hadn’t considered that my experience might be different than their own. It seemed impossible, and yet, I’d seen their reactions. They didn’t have a clue about my reality.

How could they? They didn’t share my gender, and they hadn’t lived my life

Which is why I think it’s nearly impossible for a white to imagine what it might be like to be not only black, but a black male teen like Trayvon Martin. Whatever we might imagine, it would never approach the reality of the situation.

But maybe, just maybe, we are starting to take notice.

Until next time,
Cynthia Patton

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Creative Obsession
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Welcome to another Tuesday with TED. Today we have Adam Savage talking about “My Obsession with Objects and the Stories They Tell.”

This talk is an entertaining adventure through the mind of a creative obsessive. In other words, the place where obsession and creativity meet.

What are you obsessed with? Where have your obsessions lead you?

Until next time,
Cynthia Patton

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The Sweet Life
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LemonadeApparently between my posts on inclusion, the one on stealth grief, the sixth and final installment of the insensitive autism comments, plus the post on how sometimes shit just happens, I have inadvertently given people the idea that I’m in a deep, dark funk.

Don’t worry. I’m not.

Let me repeat: I am not depressed.

Yes, I have experienced sorrow and loss as a result of Katie’s diagnosis (and the events that followed). It was a tough, tough time. But I’m not there anymore. I’m not even the same person. Today I may be a forty-something single mom of a special needs child, but I’m also more flexible, efficient, loving, patient, and compassionate. I’m clear on who I am and what I want. Katie may not always feel comfortable in her skin, but she has taught me, at long last, how to be comfortable in mine. To get there I had to let go of the life I’d counted on and embrace the life—the real, unplanned, unexpected one—I was given.

I’ve come too far in my journey toward authenticity to lie. Yes, I was sad that my marriage ended. Yes, I was sad when my pets died. Yes, I was tremendously sad (and surprised) to set aside my environmental activism. Yes, I was sad when certain people chose to leave my life for reasons only they can explain. But here’s the thing: every loss has been replaced.

My pets died, as pets tend to do, and I adopted new animals who are younger, more active, and not only tolerate Katie but adore her. I let go of my environmental activism to make room for a different kind of activism, one that has given me a new sense of purpose and a reconfigured career. (I’m starting both an autism nonprofit and a law firm—who would have guessed?) Those people who left? They were replaced by other friends—some old and some new—who have brought me tremendous laughter, wisdom, and acceptance.

The marriage, well, that’s going to take some time—but it’s coming. With every coffee date I can feel myself getting closer to a relationship that’s real.

More and more I think of this as the ying and yang of life. For everything that I lost, something else was gained.

This might be hard to believe, but my life is better for the autism. Did it take me awhile to reach this point? You bet. But I’m here now and ever so grateful. Autism has taught me things I never would have learned otherwise. It’s impacted my writing as well. I love sharing what I’ve learned on this wild, crazy journey. It gives me tremendous satisfaction to spread autism awareness and acceptance.

I read a quote recently. I think it was Vanilla Sky who said, “Without the bitter, baby, the sweet ain’t as sweet.”

Yes, I have sorrow in my life, but I also have joy. And oh baby, is it ever sweet.

Until next time,
Cynthia Patton 

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How Books Open Your Mind
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Welcome to another Tuesday with TED. Today we have Lisa Bu talking about “How Books Can Open Your Mind.” It seemed appropriate as many of us prepare to start (or have started) a new school year

This one is short, sweet, and funny. Enjoy!

Have you ever had to give up on a dream? How does your view on books compare to Lisa’s?

Until next time,
Cynthia Patton

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A Battle of Wills
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MPj03960510000[1]Lately it seems Katie and I have been locked in a battle of wills. For hours, or even days, our lives will run smoothly and I will congratulate myself that all our hard work and effort are finally paying off. Then Katie will ask for a third helping of spaghetti and meatballs, and I will say that she needs to eat her broccoli first (a conversation that happens frequently without any problem). Suddenly she erupts and a fork gets hurled across the room, a pronged projectile I am loath to intercept.

Now a coffee mug is broken and spaghetti sauce is splattered on the floor and counters. I’m angry, and she is close to tears. And neither of us is any closer to knowing what’s wrong.

Katie is also acting out during her in-home therapy sessions. Juan, her behaviorist, and I have been wracking our brains to figure out what has changed. My instincts tell me it’s related to summer school, but it’s a bit like reading tea leaves—except it’s not. All the clues are there. I just need to fit everything together into a coherent whole.

Juan reminds me that all behavior is communication. I know this, but what exactly is Katie telling us? How much of this is frustration over a lack of functional speech and how much is just my strong-willed child attempting to get her way, to assert control? I pour over the facts, shifting through pieces of the puzzle, attempting to find a narrative that will explain the story we now find ourselves in.

It sounds so simple, and yet it’s not.

A couple years ago Katie began kicking the wall of the school bus. Not just anywhere, but high up, near the window. Personally I would have ignored this behavior until it quickly extinguished, but it freaked the bus driver out. It turns out an autistic teenager on another driver’s bus had put his head through the window. and while not seriously hurt, there had been a lot of blood. Katie’s driver hated blood. She wanted the kicking stopped.

I couldn’t figure out why Katie might be kicking. She had never kicked in the car while I was driving. She rarely kicked on the morning bus ride to school, which was much longer and more crowded. She didn’t always kick on the afternoon ride. It wouldn’t happen for months, and then it would start up again. She never kicked immediately, but would start about five minutes after leaving school. Some afternoons she refused to even get on the bus, and on those days, she almost always kicked.

The bus driver could offer no explanation for these changes in behavior. She just wanted the kicking stopped because, you know, there might be blood. I wracked my brain for an answer, but it made no sense. I couldn’t see any pattern. But my intuition told me it was there.

Then one day the driver gave me the same litany as she dropped Katie off, but with one exception: she said the kicking started five minutes after leaving school, right as I was getting on the freeway. It was summer, and hot. The bus had no air conditioning so the windows were all rolled down. Katie is hyper-sensitive to sound. Suddenly the pieces fell into place, and I knew what the problem was. Katie wasn’t complaining about the heat. She wanted the windows closed to reduce noise.

I raced to the local sporting goods store and bought another pair of noise-reducing headphones. She wore them while riding the bus and the kicking magically stopped.

All behavior is communication.

In retrospect the patterns are easy to spot. But that’s only in hindsight.

When I was a child, I read all the Nancy Drew books and later moved on to Sherlock Holmes. For a time I fantasized about being a detective, searching for clues. All behavior is communication. It’s time for me to put on my detective hat and figure out what Katie is struggling to say.

Until next time,
Cynthia Patton 

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The Technology of Storytelling
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Welcome to another Tuesday with TED. This week Joe Sabia talks about “The Technology of Storytelling.”

I had to watch this one a couple times. I bet you will too!

What did you think about Joe’s storytelling method? Was it effective? How might you use technology to tell better stories?

Until next time,
Cynthia Patton

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