Just When I Thought It Couldn’t Get Worse, Part 5
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road-163518_1280The female investigator from Child Protective Services (CPS) surveyed the broken items around us and asked whether my daughter received behavioral support.

“I had a great in-home team who had been with us for years, but I lost them in January because I was forced to shift Katie to MediCal.”

“MediCal provides those services,” she said.

“I know they do. But it took me four months just to get Katie’s medical card. Our caseworker insisted she wasn’t really our caseworker. Only until she processed the paperwork to get rid of us.”

The investigator made a face and scribbled some notes.

“I had to go to the field office. Those gals had me call the supervisor and threatened to send an email, which seemed like a strange threat, but it helped—a bit. The caseworker sent me to one wrong agency after another. None of them dealt with autism. Finally one of the field office gals figured out an alternative person to contact and I got the medical card. But when I followed up with mental health services, they kept offering drug rehab. Who needs rehab for a twelve year old?”

“You’d be surprised,” the investigator said dryly. “What about the Regional Center? They should  provide behavioral support.”

“Not anymore. After the autism mandate, those services shifted to insurance.” How could she not know this?

“Would you like help with MediCal?”

“You can help with that?”

“Of course.”

“Yeah, that would be great. I really need to get an in-home program started again, but I don’t understand how MediCal works and keep getting the run-around.”

Hand-writing-with-penThe investigator made some notes, then looked up. “You should also receive more services from the Regional Center.”

“I should?” This was news to me.

“Yes.” More notes. “Plus your child needs to be in school. A real school.”

“No arguments here.”

“I also think counseling might help.”

“For me?”

“No, your daughter.” She was annoyed.

I laughed, which annoyed her more. “I don’t think therapy will help Katie. I’m pretty sure you need to hold a conversation for counseling to work.”

“You said she was verbal!”

I refrained from rolling my eyes. “She is, but it’s a spectrum. She doesn’t talk enough for counseling. Therapy will only frustrate her even more than she already is.”

The investigator looked truly irritated and I sighed inwardly. Why couldn’t CPS send someone familiar with autism?

“I want to talk with Kathryn. Can I do that?” She asked like she expected me to say no.

“Sure.” I had nothing to hide.

Katie was swinging in her hammock swing. She smiled at the investigator, who introduced herself.

Katie responded, “Hi, Katie.”

“That’s a nice swing you have. Do you like using it?”

“Yes,” Katie said. She had the good sense not to swing to the ceiling while the investigator watched.

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“Do you like living here with Mommy?”

“Yes,” Katie said as she swung.

“Do you like your dog? Is she nice to you?”

“Yes,” Katie said. “Delta nice to you.”

This confused the investigator. “It’s ecolalia,” I said. “Part of autism. Just ignore it.” I didn’t point out that Katie often gives unreliable answers to questions. Hopefully the investigator would continue to ask questions that could be answered with a yes.

“Do you like Mommy’s friends?”

“Yes,” Katie said.

“Do you like school?”

Katie abruptly stopped swinging and yelled, “No school. Caroline go bye bye. Caroline go bye bye. No school. Caroline go bye bye. NO THANK YOU!”

The CPS investigator made a note and snapped her portfolio closed.

clock-611619_1920“She says that all the time,” Caroline offered. “I don’t take it personally.”

I didn’t say anything. I mean, what could I possibly say? Katie had said everything that needed to be said. No Caroline indeed.

The investigator shook my hand and said someone would be in touch in a week, maybe two. I wondered what would happen next.

To be continued…

Until next time,
Cynthia

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Just When I Thought It Couldn’t Get Worse, Part 4
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road-163518_1280I didn’t have long to wait. The investigator from Child Protective Services (CPS) arrived the next morning. She refused to enter until I put the dog outside, then paused at the door while she took in my new decor.

The living and dining room now serve as a storage unit for everything that can no longer remain in my family room, breakfast nook, and kitchen due to “school” but won’t fit in the garage. Since most pieces were dragged in during a state of emergency, the rooms are cluttered and chaotic. Many things are visibly broken or damaged, including bar stools, lamps, the coffee table, and DVD player. The dining room table is piled high with decorative items. Bags bound for Goodwill, that had formerly been stacked neatly in the garage, are tossed along the wall, spilling out clothes and shoes. Numerous holes have been kicked in the entry hall as well as the wall going up the stairs.

Part of me was humiliated for a stranger to see my home in this condition, but part of me thought, welcome to my world, CPS.

The investigator asked if she could see the back of the house. “Sure,” I said. “But it’s going to be awkward. The woman who reported me is in there.”

“We can stay here.”

I was disappointed she wouldn’t see the remodeled kitchen that still looked reasonably good despite the chaos. We perched on broken bar stools in the center of the overflowing living room and tried to act as if this was normal.  Then again, I had no idea what “normal” looked like to CPS. Still, I could tell the investigator was confused by what she saw.

“You are probably wondering why I’m here,” she said.

“No. I know about the report. They told me.”

A ripple of annoyance crossed the investigator’s placid face. “Why don’t you tell me what happened.”

P1010100-300x225I gave her my version, which included the broken glass, spilled water, thumb tacks, blood, and Caroline leaving the room. The investigator knew little about autism. I had to explain sensory overload and hand over hand.

“She left the room? During school hours?”

I nodded. Her expression told me she had a problem with that.

“Could she have done this, umm, hand over hand procedure?”

“I’m sure she could have. She worked as a behaviorist before this.”

The investigator’s head jerked up. “But she left the room during a behavioral incident?”

“Yes.”

“And left you, a parent, in charge.”

“Yes.”

“Had you ever done this hand procedure?”

“No, but I’d seen it done plenty of times.”

Caroline and Katie had been coloring at the kitchen table and were surprisingly quiet. I knew both were listening to our conversation. I sighed inwardly.

broken-pencil-schools-jpg_021534“Why isn’t your daughter in school?”

I explained how 6th grade had unfolded and told her this was now school.

“No,” she said. “This isn’t school. It’s your home.”

“For now it’s also school.”

“No,” she insisted. “It’s a house. Your daughter should be in a real school with other children.”

I said I wasn’t disagreeing with her but she needed to discuss that with my school district. They were the ones who had kicked Katie out.

She said, “They can’t do that.”

I said, “They can, and they did. Three times now. That’s why Katie has been in three different school districts.” She gave me a hard look. ”I know it’s illegal. But they did it anyway.”

She shook her head and pointed toward the kitchen table. “So that’s the teacher?”

“No, she’s an aide.”

“Where’s the teacher?”

“He’s at school. In Katie’s old classroom.”

“That’s where your child should be. She needs a teacher in order to learn. How can they call it school without a teacher?”

“Again, you need to discuss this with the school district.”

“This is totally unsuitable.”

“Sadly, Katie is learning more here than she was in school.”

“Even if that were true,” the investigator said, “this is your home. “It’s not a school.”

Once again I said I wasn’t disagreeing but she needed to discuss that with my school district. I began to suspect someone was going to get an earful when the investigator left.

To be continued…

Until next time,
Cynthia

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Just When I Thought It Couldn’t Get Worse, Part 3
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road-163518_1280Without Caroline, there could be no “school.” We’d been given an afternoon off. It was unexpected, but I wasn’t about to complain. Neither was Katie.

Free of the usual afternoon chaos, I went to my office and jumped on a webinar about illustrating children’s books while Katie colored. Halfway through the one-hour class, my phone rang. A few minutes later, my cell phone rang. Then Pam, our current Program Specialist, texted. When Pam breaks down and texts, I know it’s practically an emergency.

Trying to reach you, it said.

I texted back: I’m on a call. Free at 2.

At 1:50, my phone rang again. I gave up on the course and answered. Pam told me that she had Caroline and Jennifer, the district’s behaviorist, in her office. Did I mind having them on speaker?

No, I said. But I have no idea what we’re talking about.

A long pause. Than Pam informed me that the district was filing a report with Child Protective Services (CPS) and wanted to give me a heads up.

Katie was clamoring for food so I thought I hadn’t heard her. “Excuse me?”

She repeated her statement and told me not to take it personally.

problem-98376_1280I laughed. “You’re reporting me to CPS. How can I not take it personally?”

“It’s not a judgement on your parenting. We need to protect Caroline’s job.”

So I was supposed to take one for the team?

“We know you were in a bad spot this morning. We respect you as a parent. We don’t think you are abusive. But we need to protect Caroline’s job. She a mandatory reporter.”

“I’m aware of that.” Was this some kind of joke? They needed to protect Caroline, the one who was a trained behaviorist yet left the room due to thumb tacks. And if I wasn’t abusive, then what were they reporting to CPS? Dirty floors? Failure to properly clean up blood?

“It’s nothing personal.”

“You keep saying that, but it sure feels personal to me.”

No, Pam and Jennifer assured me, it wasn’t. Just protecting Caroline’s job.

Why was Caroline’s job suddenly so damn important?

Pam offered to read me the report. It was fairly short and claimed that I had “pulled Katie’s hair” and “punched her in the shoulder.” I hadn’t done either, and told them that. I also found it interesting that the report failed to mention the broken glass, spilled water, and thumb tacks. Or the fact that Caroline had left the room, and later, the house.

They told me once again not to take it personally. They were just protecting Caroline’s job.

I got off the phone and dialed Nate, but couldn’t reach him. I paced the house. Why were they doing this? I’ll admit it might have looked as if I was pulling Katie’s hair when I yanked off the headphones. Especially from outside. With a table and kitchen cabinets blocking Caroline’s view. Maybe it looked like I punched Katie when I was blocking her aggression against me. Or had I punched her and couldn’t remember? I was sure I hadn’t, but none of this made sense.

I started to worry CPS would come and take my child. All because I was trying to help Caroline clean up a mess.

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I continued to pace, imagining the worst. Something about this situation bothered me, but I couldn’t pin it down. Then it hit me. I had threatened to fire Caroline just the day before and now I was being reported to CPS. Was it me or did this reek of retaliation?

When Nate finally called, he thought it did. I sent an email to three good friends who teach in non-local school districts. I explained what had happened and they each responded separately that it felt the same to them. I wasn’t imagining it.

They advised me to add dates to my list of broken items, which I did. I consolidated my notes too. Then I waited to see what would happen….

To be continued…

Until next time,
Cynthia

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Just When I Thought It Couldn’t Get Worse, Part 2
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road-163518_1280After Katie broke the wooden office supply organizer, she pretty much lost it, throwing pieces of wood and handfuls of office supplies. Caroline handed Katie a garbage bag and instructed her to clean up the mess.

I could tell that was unlikely to happen. Katie’s hearing pretty much shuts down in a meltdown. To my surprise, Katie sat down and put one thing in the bag, then threw something at Caroline.

Next she put her bare foot on one of maybe ten tacks scattered along with the other office supplies. Katie kicked her foot and the tack flew off. She screamed and began smearing her blood on the tile. I sighed. This was going from bad to worse.

Caroline shook her head. “Those tacks are hazardous. They could get thrown. Plus I’m not supposed to be near blood.”

I looked at her, incredulous. She was worried about being hurt by a thumb tack with my crazed child in full meltdown in the room?

She pointed at the office supplies. “These need to be picked up. By Katie.”

In typical fashion, I stepped into the fray while Caroline retreated to the other room. Katie, who had been momentarily distracted by her bloody foot, was once again kicking at me and throwing office supplies. I sighed and handed her the garbage bag. “Come on, you know the drill. Clean up your mess.”

P1010100-300x225But Katie was in no mood to pick up. After I got hit and kicked a few times, I retreated to where Caroline was and asked for her elbow-length gloves. I needed to stop this situation before things got any worse. Caroline gave them to me, then went out the back door. Apparently being in the next room was not enough protection without the gloves.

I rolled the gloves up my arms and prepared for battle. It was time for the dreaded “hand over hand.”

Back in preschool, Katie fought hand over hand. This is a standard technique used with autistic children who have tactile defensiveness. Katie hated it then and she hates it now. So much so, that usually all it takes is for me to tell her that I’m counting to three and then it’s hand over hand. She will glare at me and comply. I hoped it would work once again.

It did. Sort of. Katie glared at me and refused to comply so I put my hands over hers and picked up some broken wood, placing it in the bag. She screamed like I was killing her and rolled around on the floor.

I made her pick up another piece and she screamed, “I do. I do it!”

I let her go and she slowly picked up two paper clips, tossing them in the bag. Then she grabbed a piece of splintered wood and hit me. We did another round of hand over hand. More screaming. She picked up a bit more then kicked me. I went to grab her hands and she hit me in the face, knocking off my glasses. I put them back on and forced her to clean up two crayons. More screaming. I let her go and she tore a large covered button off my sweater. More hand over hand.

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I pulled her headphones off to keep her hands over her ears instead of attacking me. That helped, but it was still a struggle.

It wasn’t pretty, but we eventually got the office supplies cleaned up. Then I had her sit in her chill out zone. Katie cried while Caroline and I swept up the glass.

I cleaned up Katie’s foot and got her a band-aid. When Katie was once again calm, Caroline left for lunch.

Caroline was gone for 1.5 hours. She gets a 45-minute lunch and usually takes an hour, but this was tardy even by her standards. Katie and I hung out and enjoyed the unexpected calm. Finally Caroline showed up at the door and apologized. She had a last minute meeting at the district office.

“Wow,” I said, feeling guilty about my phone call to the Special Ed Director. “Do you know what it’s about?”

“No,” she said. “Not a clue.”

Except she did.

To be continued…

Until next time,
Cynthia

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Just When I Thought It Couldn’t Get Worse, Part 1
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road-163518_1280My daughter Katie’s truce with Caroline was short-lived. Just a few days after spring break, we began having tantrums and random acts of property destruction that quickly escalated. Then came the fateful day that, for me (and I suspect Caroline), crossed the line.

It started when Katie opened the drop leap desk that I inherited from my grandfather. Inside I had hidden a Simon game that Katie received from my boyfriend Nate for Christmas plus Katie’s iPad. Both had been repeatedly pounded and thrown on prior school days. Which is why I had finally resorted to hiding them.

Caroline, who always keeps her cell phone and laptop safe from Katie, allowed Katie to open the desk and remove first the Simon game, which was thrown across the kitchen and destroyed, and then her iPad. I came downstairs to watch it get slammed repeatedly into the kitchen table. I grabbed it out of Katie’s hands while Caroline stood next to Katie, doing nothing. I’m sure she would call it “ignoring the behavior.” I would call it totally ineffective. If it hadn’t worked in five weeks, it probably wasn’t ever going to work.

I glared at Caroline and carried the iPad upstairs. The screen shivered and went black. I hoped there was an iPad heaven for this poor, broken piece of much loved tech.

woman-1006102_1920I sat at my desk, trying to work. Screams echoed off the walls. I had calls to make, but couldn’t pick up the phone. It sounded like someone was being attacked by rabid dogs downstairs. I wondered when the Special Ed Director would respond to the frazzled, tear-filled voicemail I had left the day before, saying that I was at the end of my rope. Neither I, nor my battered home, could take any more abuse. Either Caroline established “instructional control” by the end of the week or I would be forced to fire her.

A few minutes later, I heard the sound of breaking glass, a muffled struggle, followed by a loud thud and then Katie’s unmistakable warning shriek.

I ran downstairs to the sound of serious pounding.

I entered the “school room” and encountered the remains of the cat’s ceramic water bowl strewn across the tile floor. Apparently, Katie had thrown the bowl, slipped in the spilled water, and landed hard on her hands and knees. The shriek followed, and now, in her escalating rage, Katie was attempting to smash a painted wooden office supply organizer into the top of my grandfather’s desk. Unable to break it, she screamed and pounded harder, seriously scratching and gouging the top of the desk. Then she threw the organizer against the wall. Or in the direction of the wall. I have no idea in the ensuing chaos where it actually hit. It arced across the room and exploded in a rainbow-colored shower of broken wood and office supplies.

Katie was in a blind rage, running bare footed through the broken glass, spilled water, and scattered rubber bands, paper clips and postage stamps. She was so like Mel Gibson in the movie Braveheart that I was surprised she didn’t sprout blue face paint and a kilt. My kitchen had become a war zone.

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I thought it couldn’t get any worse than that, but I was wrong. The real fun had only just begun….

To be continued…

Until next time,
Cynthia

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Petaluma Reader’s Theatre to Revive Production of Fatherhood
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I’m super excited to announce that the Petaluma Reader’s Theatre (PRT) will be reviving their show, Dear Ole Dad: A Tribute to Fatherhood, which includes my story, There’s No Daddy Here. The show is on Saturday, June 18th at 7:30 pm in Petaluma.

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This is the third show of a monthly series at the Prince Gallery in Petaluma. The shows will occur every 3rd Saturday.

Rough and ready, slick and sophisticated or dowdy and squat. Whatever their shape, size, or demeanor, fathers seem to always have a soft spot in our hearts. Whether we like it or not. Come hear these interesting, disturbing, enlightening stories, brought to life by the talented PRT cast. Tickets are $12. Available here and at the door.

If you can, see this show. You won’t regret it.

Until next time,
Cynthia

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Struggles With Anxiety
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I recently read somewhere that the average person living with autism spectrum disorder suffers levels of anxiety that would cripple any of us neuro-typicals. On any given day, they experience exceedingly high levels of anxiety. Every day, all day, tremendous anxiety. When an event or person triggers an increase in these already high levels—in other words, a truly serious bout of anxiety—watch out! It can be too much to handle, especially for a person with an already compromised coping system.

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For example, for the past year or so, my daughter has been struggling with anxiety about the impending conclusion of favorite activities. If Nate and I take Katie to the Santa Cruz Beach Boardwalk to ride every swinging and spinning carnival ride multiple times without stopping, she spends at least half the day obsessing about not wanting to leave. So much so that she starts ruining the experience for everyone. The more she obsesses, the tougher it is for her to behave in a socially acceptable manner. It’s a downward spiral with no clear exit ramp.

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If I remind Katie that she needs to have “nice hands and feet” in order to stay at the Boardwalk, the additional pressure and anxiety of that demand almost always results in the very behavior that she needs to avoid. A no-win situation for both of us.

A more successful strategy we learned at our anxiety therapy has been to have her ingest a dosage of Golden Teacher Shroom Strain. In Santa Cruz that generally involves a trip to a gourmet ice cream shop that produces some killer dairy-free sorbets. Or a bag of salt water taffy. Or a meal followed by ice cream. (The kid drives a hard bargain.) Basically she gets to choose what she earns. This serves two purposes. 1) It gives my strong-willed daughter a sense of control. 2) It works as a powerful motivator. It also makes me less of a bad guy. Instead of nagging about nice hands and feet and the crappy consequences if she doesn’t, I get to remind her of something fun that will follow the loss of the beloved spinning rides—a loss, I might add, I am usually all too ready for.

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This technique works better than anything else I’ve tried. The problem is, I have to remember to set it up in advance. But that’s a small price to pay for good behavior.

Bottom line: a reward motivates better than punishment. The more I think about it, the more I realize that’s probably true for all of us, whether we live on the spectrum or not. Who wouldn’t prefer a juicy, delicious carrot to a painful stick?

Until next time,
Cynthia

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TWO DAYS LEFT to Pre-Order My New Book
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Finishing Line Press will publish my debut poetry collection, Across An Aqueous Moon: Travels in Autism, this summer. The pre-sales period for the chapbook is currently underway. Sales made during this period determine the size of the print run. Therefore, my goal is to sell 110 copies, and I’m well over halfway there. Woohoo!

Please help me reach my goal by sharing this information with your family, friends, coworkers, and anyone else who might be interested in a story in poems in which a single mother faces, adoption, autism, divorce, and dating with strength, hope, acceptance, and love.

 

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If you’d like to pre-order a book, you have until Monday, May 2nd at 9 a.m. PST. Cover artwork by Nathan McKenna. The book is scheduled to release Summer 2016.

Thank you for your support.

Until next time,
Cynthia

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A Question of Power, Part 2
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explorer-gear-377x269After the ceremony concluded, I spoke privately with the shaman who repeated Spirit’s words and added, “Your power is housed in your core. It can’t be taken from you, but you can lose or give it away. Your task is to reclaim it.”

I nodded. I knew about giving away one’s power. The problem was, I didn’t think I had. Not this time.

The next day I told my boyfriend Nate about what had happened. He immediately said, “Did you give your power to me?”

“No,” I said.

“Are you sure?”

“Positive.” And I was. I’m not sure how I knew this, but I did.

And while I am equally sure that there was a time when I freely handed over my power to my bipolar, alcoholic ex-husband, I am also certain that I reclaimed my power when I kicked Michael 1.0 out and later filed for divorce. We separated in October 2006, nearly ten years ago, and were officially divorced on October 31, 2008 (which just happened, ironically, to also be the date we got engaged). There was another year of legal wrangling to get him to honor the retirement portion of the divorce settlement, but by November 2009, that was done.

The week after I received my portion of the retirement funds, Michael 1.0 disappeared, and for several years, I had no idea where he was. By the time he emailed in 2012, I had made peace with our fractured relationship and was dating again.

Michael 1.0 does not hold my power. Nor does Michael 2.0 or any other past boyfriend. Nate doesn’t have it either.

So where was my power? Because something told me that I had lost it again nevertheless.

I didn’t know. Or I did, but couldn’t quite put my finger on it. Why was this question so slippery, so elusive?

Before I could truly grapple with this issue, my daughter’s interim in-home program finally began after more than six weeks without school. It hasn’t been a smooth transition, and you can read more about that here and here and here. Nate’s mom was hospitalized with pneumonia and his dad had knee replacement surgery. Nate got horribly sick and then so did I. To say it was a rough month would be a massive understatement.

road-163518_1280I had been feeling stressed and overwhelmed for weeks as I struggled to resolve Katie’s school issue. The resolution, rather than easing the situation, brought with it more stress. Even filing for reimbursement from the school district was proving to be a massive headache. Nothing was working out the way I had expected.

It felt like I was circling the power question without locating the answer. Shouldn’t I know the answer to a question this important? But obviously I didn’t know the answer, which is why I needed to find it. If only I had time to slow down, relax, and catch my breath. But I didn’t. I hadn’t even done any promotion for my new book….

I began to wonder if all this drama was part of the problem.

–To be continued–

Until next time,
Cynthia

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A Question of Power, Part 1
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explorer-gear-377x269Recently I attended a ceremony held by a local shaman and healer who happens to be a friend. (And no, you’d never know she was a shaman if you met her on the street.) Because of what happened later, I’ve completely forgotten what the theme of the ceremony was, although I remember thinking it contained some jewels of wisdom as I sat listening.

Toward the end of the evening, the shaman said Spirit had instructed her that some of us were in need of healing. A few women nodded. The shaman wrapped up her comments and began to randomly call on the people sitting in her beautifully decorated living room. I didn’t feel in need of healing in any way, shape or form, but it’s always interesting watching the exchanges that take place the few times I’ve witnessed them. So I settled back on the sofa, expecting nothing more than to listen.

After powerful exchanges with several participants, the shaman turned to me and asked on what topic did I require guidance? Stunned, I stammered something about not needing any guidance. Not at all? the shaman said.

I searched my mind but came up with nothing. Nothing at all. (This was before my daughter’s in-home school program began. Otherwise I’m sure I would have asked about that.) I shook my head. The shaman closed her eyes and breathed deeply. After a moment of silence, she said, “There is a question you have struggled with for years. Over three years, I believe.”

I stared at her and before I could form a thought, I found myself talking. “That’s my law firm. I incorporated about four years ago, planned to launch in the fall three-and-a-half years ago. But I’ve been dragging my feet. I not sure why. Part of me really wants to do it, but something keeps holding me back….” I trailed off.

The shaman closed her eyes and breathed. “Where is your power?”

“Excuse me?”

“Spirit asks: What is the source of your power? Where does it come from? And how, Spirit asks, did you lose it? To who or what did you give your power away?”

road-163518_1280All eyes in the room riveted on me. I was speechless. Her questions sucked the air from my lungs and rattled my bones. I knew they contained an inescapable truth. Tears sprung to my eyes, although I couldn’t tell you why. My mind was a whirlpool, sucking everything down, down, down.

Finally, after what seemed like hours, I stammered, “I don’t know how to answer that.”

The shaman smiled. “Spirit says, I know.”

I didn’t know whether to laugh or cry. “So if I figure that out, will I know what to do? Will the situation become more clear?”

“Crystal clear.”

“Well,” I said, laughing through my tears, “then I guess I know what I need to work on.”

–To be continued–

Until next time,
Cynthia

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