Flyer for Autism Awareness Event
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Here’s the flyer for the autism awareness event that I will be reading at with Connie Post and Anne Ross on Saturday, April 23, 2016, called Celebrating Life on the Spectrum. The event will feature poetry and prose dealing with autism spectrum disorder. Marilyn Kammelgarn will read selections from Chicken Soup for the Soul: Raising Kids on the Spectrum, which includes my story, The Most Popular Girl.

Proceeds from the event will benefit Autism A to Z. To learn more about the organization, go to AutismA-Z.org.

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This is going to be a great event. I can’t wait!

Until next time,
Cynthia

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Two Weeks Remain for Pre-Sales of My New Book
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Advance sales of my poetry collection, Across An Aqueous Moon: Travels in Autism, are almost over. The pre-sales period ends April 29th. My goal is to sell at least 110 copies, as the advance sales determine the size of the print run. I’m proud of this book and want it to reach as many people as possible, particularly those impacted by autism spectrum disorder. Therefore, if you are inclined to purchase a copy, please do so now. 

You can order the book from the Finishing Line Press website here.

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The book is scheduled to be released on June 24, 2016.

Until next time,
Cynthia

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The Light At the End of the Tunnel?
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seagull-768785_1920My daughter and I had a peaceful spring break. I did what I could to keep her on schedule, to not let her spend much of the day in her pajamas, lounging with the iPad. Caroline and I were both afraid of starting over if I allowed Katie to have a truly relaxing break without much structure. So Monday through Friday, I spent an hour forcing Katie to read, write, and do math. It sucked, and I got some behavior, but the alternative was even worse.

Now we are back in “school” and after several rough days, Katie seems to have at last grudgingly accepted that Caroline isn’t going anywhere. She sits at the kitchen table without anyone asking and does most of her work with a brooding compliance. Given where we left off before break, this is huge progress.

The day before spring break started, on my birthday no less, Katie had a sensory meltdown of epic proportions. She totally lost it while playing Connect 4, and scratched me, refused to take turns, and then threw the game across the room. By the end of the incident, she had practically torn my shirt off. In the struggle, she managed to break her sound-blocking headphones. She sat crying in her “chill out zone,” fingers jammed in her ears. Caroline left for the day, and I sat at the kitchen table, crying along with Katie. So much for a happy birthday.

Fortunately for me, Katie’s behavioral outbursts end the moment Caroline leaves, so once she was calm, I had her count the checkers, search for the missing pieces, and then put everything away, which she did without incident. I salvaged the headphones with ductape, but we were both wiped out. I was getting over a cold, and Katie was coming down with one. We took a nap and then headed to Nate’s place for microwaved lasagna and birthday cake. We were both asleep by 9 p.m.

Swinging_Away_the_SummerThe next day, I laid down the law. Katie glared at me, but didn’t argue. I then spent the following week letting her swing, and swing, and swing. It took several days, but finally she lost the “twitches.”

Now that we are back in school, I’m determined to keep it that way. The problem is, I don’t know how. I know that unmet sensory needs result in behavior. I also know the week before break Katie was extremely twitchy. I need to keep the twitches at bay or we will once again have boatloads of behavior. If I can solve this problem, Katie will finally be free to use that bright, creative mind of hers to learn.

Remember that ill-fated game of Connect 4? We were playing it once again because as I’ve recently begun to suspect, Katie was using strategy to block my moves. Before her meltdown, she was kicking my butt. I have a law degree and my disabled twelve-year-old was beating me at a game, hands down.

Somehow, some way, I need to set that brain free.

I’m not going to rest until I do.

Until next time,
Cynthia

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Reading to Benefit Autism A to Z
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logo-a-to-z-mediumI will be reading at a very special autism awareness event on Saturday, April 23, 2016. Called Celebrating Life on the Spectrum, the reading will be hosted by the nonprofit organization Autism A to Z. I will be joined by Bay Area writers Connie Post and Anne K. Ross.

The event will feature poetry and prose dealing with autism spectrum disorder. Marilyn Kammelgarn will read selections from Chicken Soup for the Soul: Raising Kids on the Spectrum, which includes my story, The Most Popular Girl.

Connie Post was the Livermore Poet Laureate from 2005 to 2009, and is the author of Floodwater, When The Sun Drops, and Trip Wires. She hosts the Valona Deli Poetry Series in Crockett, California.

Anne K. Ross is an award-winning writer and school psychologist. She recently published Beyond Rain Man: What One Psychologist Learned Raising A Son on the Autism Spectrum.

The free event will take place on Saturday, April 23, 2016, from 7:30 to 9:30 p.m. at the Bothwell Arts Center, 2466 8th Street in Livermore, California. A book signing will follow the reading. Proceeds from the event will benefit Autism A to Z. To learn more about the organization, go to AutismA-Z.org.

Until next time,
Cynthia

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Spring Break
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It’s spring break! Katie and I are taking a much needed vacation on the coast, but Katie wanted me to say hi.

(Katie may have a speech delay, but that doesn’t mean she’s not an extrovert.)

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Have a wonderful week, and I’ll see you next Thursday.

Until next time,
Cynthia

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Only Four Weeks Remain for Pre-Sales of Across An Aqueous Moon
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Advance sales of my poetry collection, Across An Aqueous Moon: Travels in Autism, are halfway over. The pre-sales period ends on April 29th. My goal is to sell at least 110 copies, as the advance sales determine not only the size of the print run but also how much I get paid. I’m making progress, and learning about book promotion in the process.

You can order the book from the Finishing Line Press website here.

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The book is scheduled to be released on June 24, 2016.

Until next time,
Cynthia

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April is Autism Awareness Month
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April is Autism Awareness Month, and to celebrate, Future Horizons, Inc. made this video featuring Dr. Temple Grandin. It’s simple and inspiring, just like Dr. Grandin herself.

Enjoy!

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Another Trip Around The Sun
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Exactly one year ago today, in the final hours of my 50th year on earth, I submitted a chapbook-length manuscript to Finishing Line Press.. Last October, they accepted it for publication. And today I am halfway through the pre-sales period, getting a crash course in book promotion.

It’s interesting how the universe works. If I had not gotten a nasty thumb infection, I probably never would have attempted a poetry manuscript. And yet here I am, one year later, with a book set to release in June—just not the one I expected to publish! Which is pretty much how things tend to happen in my wacky, wondrous unplanned life.

I’m actually pretty grateful for that thumb infection and how things worked out!

To celebrate my forthcoming book, Across An Aqueous Moon: Travels in Autism, as well as all the crazy twists and turns that brought me to where I am today (not to mention my upcoming birthday!), I thought I would post a poem. This is one of the poems from the book. The first one, in fact.

THIS IS WHAT HAPPENED

An untold wait followed by joyous,
razor-sharp months, then a clear-cut forest
on the blackened slopes of my once verdant heart.
I wandered the moonscape, stumbling over
silence, dragging my grief—an ox at the plow.
Then a stormy angel turned terror inside out,
a seedling sprouted strong and sure
from the debris of my discarded
life.

I predict my next trip around the sun is going to be a fabulous one!

Until next time,
Cynthia

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The Dark Before Dawn
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Sad manI hate it when I’m right.

At least about stuff like this.

My daughter is in full out behavioral free fall. Every negative thing she has ever done is being resurrected before my eyes, and I’m powerless to stop it because the only way to stop it is to have Caroline (aka school) leave for good. And I’m not going to cave in to those demands.

So Katie continues to escalate her behavior to ever more outrageous assaults—to Caroline, to Nate, to me, to the house and its contents. No matter how much stuff I strip from the family room/breakfast nook/kitchen area, Katie finds something to pound, throw, or otherwise destroy.

I’ve been scratched, kicked, and hit. Ive had things thrown at me. So has Caroline. Sadly, I’m the one with the most “instructional control.” It was hard won over the years, but it’s not helping much at the moment.

The one time I left for two hours for an optometrist appointment that I’d already rescheduled three times, Caroline and Nate called four times in a row to ask for assistance. Finally Dr. A pulled the pressure gauge from my eye and asked if I wanted to answer the phone. I did, but really, what can anyone do in the middle of an eye exam?

It’s not just challenging behavior we are grappling with, but also full-out sensory overload. I am well-versed in assessing Katie’s level of arousal and managing her sensory needs at home and in the community. But other than an hour spent with the reading tutor, I don’t have any experience in how to manage her sensory needs in a learning environment. So I’m feeling my way through this, and so far, it’s not going well.

MPj03960510000[1]The district’s occupational therapist is supposed to be helping us, but to date she’s been AWOL. The district’s behaviorist, like Caroline, is focused on the behavior. But as any parent of a child who struggles with sensory processing disorder will tell you, behavior that occurs during a sensory meltdown is not exactly voluntary. The child is in survival mode and the fight or flight  instinct kicks in. Many kids on the spectrum default to flight and bolt. Katie, however, defaults to fight. A sweet little girl who suddenly begins fighting like a wildcat seems to throw people for a loop. I’m used to it, but still, it’s no fun for anyone—me, Caroline, and least of all, Katie.

I need to figure out this new puzzle. The signs I’m used to seeing are either absent or hidden, so I’m navigating blind. I know one day I will discover the clue that ties everything together, but until then, I’m pretty much house-bound, helping Caroline when I should be working, promoting my new book, or focused on self-care. It sucks but something keeps telling me to stay the course. I can only hope this experiment ultimately pays off. Because really, what else can I do?

Until next time,
Cynthia

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Petaluma Reader’s Theatre to Revive Defining Moments Production
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I’m super excited to announce that the Petaluma Reader’s Theatre (PRT) will be reviving their show, Defining Moments: Personal Stories of Joy and Regret, which includes my story, Elliott Comes to Play. The show is on Saturday, April 16th at 7:30 pm in Petaluma.

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This will be the first show of a new monthly series at the Prince Gallery in Petaluma. The shows will occur every 3rd Saturday.

The Defining Moments show is about those moments when things change. Moments that define who we are. Moments that give us answers, or present universal questions. Nine authors’ stories take us to New Orleans, a Dairy Queen in the desert, a 5th grade class room…. Defining Moments can happen anywhere, at any time. Come hear these interesting, disturbing, enlightening stories, brought to life by the talented PRT cast. Tickets are $12. Available here and at the door.

I was able to see the production the last time it was performed in 2012. Seeing my work on stage, brought to life by  talented actors, was one of the highlights of my writing career. I can’t wait to see it again, this time with Nate!

If you can, see this show. You won’t regret it.

Until next time,
Cynthia

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