Pioneers
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Covered_Wagon_(Baker_County,_Oregon_scenic_images)_(bakDA0057c)

 

Given that I recently completed a poetry chapbook of autism poems (oh yes I did!) and read at an autism awareness event sponsored by the Sacramento Poetry Center at the UC Davis MIND Institute in Sacramento earlier this week, I thought it might be appropriate to post a poem instead of my typical essay.

This is the first poem that I read Monday night.

 

 

 

PIONEERS

I had no idea when nurses lowered
you into shaking, newborn hands
how far we would journey—pioneers
huddled against the howl of wolves.
We followed a weedy, rutted track
into the dark unknown, possessions
abandoned like cast-off toys,
bones hidden in waves of grass
crushed beneath a fathomless sun.
Time peeled away the others,
fear and frustration swallowed
our weary steps.
Too far to turn back
Too far to go

 

Until next time,
Cynthia Patton

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Second Guest Post on Monday Coffee
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Monday Coffee AnthologyThe multi-talented Liz Whiteacre asked me to do another guest post for the Monday Coffee and Other Stories of Mothering Children with Special Needs website and blog. If you remember, I had a story published in the Monday Coffee anthology back in October 2013.

Given that the post was scheduled for April which is Autism Awareness Month, Liz asked for a story that celebrated autism. I said, no problem! Here’s my post: That’s Why They Call It a Spectrum. The parents who contributed to the anthology, and now to the blog, are an amazing bunch. I’m honored to be a part of this inspiring group and thrilled to be helping with the blog.  Go check it out!

Until next time,
Cynthia Patton

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Flyer for Autism Awareness Event at the UC Davis MIND Institute
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Autism Awareness Event at the UC Davis MIND Institute
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facilities_img2This week I am busy stressing out over the upcoming autism awareness event at the UC Davis MIND Institute.  I will be a featured reader at this wonderful event which is sponsored by the Sacramento Poetry Center.  I’ll be reading both poetry and prose.

To say that this is kind of a big deal for me would be an understatement. So instead of my normal post, I’m giving you a gentle reminder.

The event will take place on Monday, April 13, 2015, at the U.C. Davis MIND Institute in Sacramento, California. Art walk and reception begin at 6:30 p.m.; featured readings will follow at 7 p.m.

I can’t tell you how honored and excited I am to be included in this amazing event. The roster of featured writers and poets is incredible. If you can make it up to Sacramento on April 13th, please do. You won’t regret it. This will be a fabulous evening of poetry, prose, and art.

The event is free and open to the public, although donations will be gratefully accepted. The MIND Institute is located at 2825 50th St., Sacramento, CA, 95817. For more information, call 916-703-0280.

I hope to see you there.

Until next time,
Cynthia Patton

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Cynthia’s Yearlong 50th Birthday Bash, March Update
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J0341653As I described back in April 2014 (you can read the post here), I celebrated my 50th birthday with a year of activities, challenges, and FUN designed to honor this milestone. I called it Cynthia’s Yearlong 50th Birthday Bash, and it was an incredible experience. Perhaps this little project didn’t alter the trajectory of my life, but it forced me to tackle new things, honor my writing goals, and remember to save time for fun!

I made a big push in March to end the year with a bang, so to speak, so prepare yourself for a whole bunch of 50th birthday awesomeness. Here’s what I did in March to celebrate:

  • Launch—I’m (re)launching my push to complete the the third draft of my memoir. A thumb infection derailed my original plans, but in April I hope to get myself back on track. Jennifer Simpson and I have committed to exchanging manuscripts on April 15th. I intend to have the first 200 pages of my memoir as good as I can get them. Aiming for a completed third draft by August 2015.
  • Submission—In late February and March, I submitted to Lunch Ticket for its Diana Woods Memorial Award, Salt Hill Journal, the Oregon Poetry Association, and three (yes, three!) Chicken Soup for the Soul anthologies. I wrote a guest post for the Monday Coffee website, a blog for parents of disabled children. I also submitted a grant application for a National Endowment for the Arts (NEA) fellowship in creative nonfiction. It’s a long shot, but I qualified so why not? And last but not least, I submitted a chapbook-length poetry manuscript to Finishing Line Press for its Emerging Women Poets Chapbook Contest. (See below for more details.)
  • New Things—1) Spending the night in front of the Livermore Public Library in order to enroll my daughter Katie in the Exceptional Needs Network’s special needs summer camp. It was exhausting but I got her in! Four days of awesome fun for her, and four days of much needed R&R for me. 2) Poetry chapbooks (see below). 3) Taking Katie to her first Alanon preteen meeting. She loved it! 4) Lanna Thai restaurant (quite tasty). 5) Ohmega Salvage in Berkeley (thanks, James Bonacci). 6) Calling myself a writer AND a poet.
  • Challenge—About a month ago, a fellow writer told me about a chapbook competition for emerging female writers. I’d been feeling frustrated that due to my thumb infection I hadn’t been able to work on my memoir as planned and would be unlikely to complete my manuscript by my self-imposed deadline of 3/31. I researched the competition and decided to challenge myself and see if I could complete a chapbook-length poetry manuscript. I consider myself primarily a creative nonfiction writer, so this was a big stretch. I wrote and revised poems every spare moment, and in late March submitted my manuscript! I am so glad that I pushed myself to do this. I have a completed manuscript—just not the one I planned or expected!
  • Fun—This month I took Katie not only to Marine World/Discovery Kingdom, but also to Dublin’s Saint Patrick’s Day Festival. Too many spinning, twisting, splashing rides for me to count! I had several dates, and met at new poet friend for coffee twice to discuss—you guessed it—poetry. Katie and I attended an ice cream social at her school, and I had lunch with a new friend. For Spring Break, Katie and I are heading up to Sea Ranch for a week of hiking, relaxing, and birthday celebration. And yes, there’s a party in the works!

What new activities and challenges did you tackle this month? Let me know in the comments.

Until next time,
Cynthia Patton

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An Unexpected Detour
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Hand-writing-with-penBack in November 2014, I launched my second push to complete the third draft of my memoir. My goal was to edit the first 100 pages and rewrite the second 100 pages. By the end of the year I planned to have 200 pages completed (or roughly two-thirds of a book). Then a nasty thumb infection struck. Although I managed to flesh out a few short scenes, for the most part, this goal was postponed. I couldn’t type or write with a pen for more than a few minutes without my hand cramping up, or worse, throbbing in pain. Although I wasn’t happy about this, I also had to accept the fact that, at least for the short-term, I didn’t have a choice.

The infection is finally under control (yay!) and I am on the road to recovery. I’ve completed two months of physical therapy and have at least one more to go before I have a fully functioning thumb. Typing or writing longhand, at least in moderation, will help my hand improve. So I am turning my attention once again to my long-delayed third draft.

But wait….

Connie Post, a fellow writer and autism mom, as well as my neighbor and the former Livermore Poet Laureate, told me a month ago about a wonderful chapbook competition for emerging women poets offered by Finishing Line Press in Kentucky. Any woman who hasn’t had a full-length book of poetry published can submit. I consider myself a literary nonfiction writer, not a poet. I’ve only had three or four poems published—ever. But I do write poetry on occasion. All I needed was 23 to 26 poems, preferably ones that revolved around a central theme, ready to submit by March 31st.

I really wanted to have a completed manuscript by my self-imposed deadline of March 31st. I couldn’t finish the memoir in time, but what if I took a short detour and did a chapbook instead? I decided to take the plunge and challenge myself. Wasn’t that the whole point of my Yearlong 50th Birthday Bash?

For two weeks, I lived and breathed poetry. It took a lot of work, but by mid-March I had enough autism poems (24 to be exact, with a few more waiting to be finished) to complete a chapbook-length manuscript. I turned my attention to revision. The thought of submitting no longer seemed far-fetched.

ThumbupNext Tuesday (or sooner) I’ll be sending my manuscript off with fingers crossed. If I make it into the top ten finalists, my chapbook will be published in print and eBook format. It may take a year, but that’s okay. I’ve got plenty of other projects to keep me occupied while I wait.

It’s interesting how the universe works. I’ll have a completed manuscript by the time my 50th year ends—just not the one I expected! Which is pretty much how things tend to happen in my wacky, wondrous unplanned life.

Until next time,
Cynthia Patton

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Thank You, I’m Fine
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rustic lockIt’s ironic that of all the disabilities my daughter could have had, Katie was diagnosed with autism spectrum disorder. Kids on the spectrum have trouble identifying and labeling their emotions. But sadly, so do I.

No, I’m not on the spectrum, yet I was never taught while growing up how to express and handle my feelings other than in the most general way. According to my former therapist (yeah, I had one; you would too with my crazy life), this is not uncommon in modern America. (So don’t feel bad, Mom and Dad!) I know how to label the “basic four”—mad, bad, sad, and glad—but beyond that, despite years as a writer, I struggled.

More often than not, I’d simply default to a standard, “I’m fine.” Which is how, ironically, my therapist busted me. When your only child has just been diagnosed with autism and your husband has a major manic episode, relapses (again), and moves out, things are rarely “fine.”

I knew I wasn’t fine, but I didn’t have adequate words to express how I felt in that chaotic time. Or any time, really.

When my therapist gave me a one-page list of hundreds—hundreds!!—or emotions, graded by intensity, both positive and negative, he almost completely blew my mind. Who knew there were so many?

Perhaps it would  be more accurate to say I knew that many words existed, but I had no experience in applying them to my unexpected, unplanned life.

So for the past decade, I’ve been working in various ways to expand my emotional vocabulary. Several months ago, when a friendly store employee interrupted Katie’s minor tantrum because I wouldn’t buy the junk food she wanted to ask how she was, Katie snapped, “I’m good.” She most definitely wasn’t good, and in that moment I realized I haven’t done as great a job as I’d hoped in teaching emotions to Katie.

Later still I would realize that I’ve been so focused on being strong for Katie that I haven’t always demonstrated much of my expanded emotional vocabulary. I needed to strike a better balance. We both needed to “use our words.”

I’m happy to report that we’re making progress. Last week when someone interrupted Katie’s insistent rant that I buy more frozen strawberries (in addition to the CostCo-size bag I’d purchased the day before), she responded, “I’m … I’m … mad…. No, I’m … frustrated!”

0825_Fresh_Strawberries_from_Sanok,_Poland_2013The store employee blinked and then said, “I’m sorry you’re frustrated but I’m still glad to see you.”

Katie considered this, smiled, and said, “Glad to see you.” We exchanged a round of high fives and the employee and I chatted for a minute. Katie said, “Happy now.”

Later, as our groceries were being bagged, I noticed a package of frozen strawberries in among the other items. Katie smirked. As we exited the store, she offered to carry a bag—the one with the berries, which she guarded until it was safely inside our home. We had strawberry smoothies with dinner that night. Katie was thrilled.

My child may have trouble getting the words out, but she understands problem solving and emotions just fine.

Until next time,
Cynthia Patton

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Guest Post at Monday Coffee
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Monday Coffee AnthologyThe multi-talented Liz Whiteacre asked me to do a guest post for the Monday Coffee and Other Stories of Mothering Children with Special Needs website and blog. If you remember, I had a story published in the Monday Coffee anthology back in October 2013.

Given that the post was scheduled for Saint Patrick’s Day, Liz asked for a story about luck. Fortunately I had just the thing. Here’s my post: A Leprechaun Named Mike. The parents who contributed to the anthology, and now to the blog, are an amazing bunch. I’m honored to be a part of this inspiring group and thrilled to be helping with the blog.  Go check it out!

Until next time,
Cynthia Patton

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Some Thoughts on Luck (And Other Stuff)
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800px-Luck_is..._(explored)As Saint Patrick’s Day approaches, I’ve been thinking a lot about luck. Most people think it’s incredibly unlucky that after eight years of infertility, my ex and I adopted a baby girl who turned out to have autism spectrum disorder—a diagnosis that while not the sole reason for our separation after 15 mostly happy years together and 12 years of marriage, was most certainly the final straw for my already overwhelmed (and under-medicated) husband. He moved out three weeks after the diagnosis. A long and chaotic divorce followed.

Instead of a healthy nuclear family with a solid income, I ended up a full-time solo parent of a disabled child. Suffice it to say, autism turned my safe, well-ordered world upside-down in every way possible.

So yeah, I can kinda see how someone might view this as unlucky. Maybe ever seriously, incredibly unlucky. And while I might have agreed with this sentiment while deep in the throes of a brutal divorce with a bipolar alcoholic who was both manic and drinking, I certainly don’t share it now.

Did I think my life would turn out differently? Sure. Would it be helpful to have another adult to split the work? Undeniably. Do I sometimes fall into bouts of self-pity? I hate to admit it, but yes. All that said, I could never view my beautiful daughter as bad luck. Cliches aside, adopting Katie was the best thing that ever happened to me, even if it cost me my marriage, the bedroom furniture, two cars, a kitchen table, and half the pots and pans.

Yes, I lost a lot of money and possessions. But when all is said and done, I kept what was most important: my pets and my child. (I kept the house too!)

Katie makes me laugh every day—even without words—and forces me to view the world differently. She has taught me so much about life and love. She broke my heart and mind wide open, and that has brought riches I never would have imagined. She gave me a new life, a new passion, a new career.

I’m grateful that Katie exposed me not only to profound love and joy, but also tremendous anger, despair, grief, and heartbreak. As a result I have more patience, flexibility, and compassion, but also an enhanced capacity to love in an unconditional way that I never knew or understood before.

MeropeKatie continues to teach me the paradox that vulnerability and weakness are our greatest strengths, and that there is incredible beauty in our differences. Diversity is not something to be feared. It is not something for which to be ashamed. Our scars and disabilities make us unique and precious. They make us beautiful. Each of us, even those with autism or other challenges, have gifts to share with the world.

Katie taught me that each of us is here on earth for a reason. Each of us has value.

For this and so much more, I thank my daughter Katie from the bottom of my heart. She is not a jinx or a curse. She is my lucky star, guiding me along a sometimes dark and rough path I never planned or expected, but one I wouldn’t trade or alter for anything in the world.

Until next time,
Cynthia Patton

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It’s IEP Season, Part 1
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Stack of papers2My daughter Katie’s birthday was in January, so that means IEP (individualized education plan) season has begun. Like most special needs parents, I dread this time of year. As a single mom, it means a ton of meetings, paperwork, and reports jammed into an already overflowing schedule. Who needs that?

This year I had some advanced warning of what was to come. Back in October 2014, Katie’s teacher had coffee with the mother’s of her students. On mom asked Ms. Nav to describe the two middle school programs. I was stunned to learn both were essentially life skills classes. In other words, the school abandons academics and focuses on skills such as using money, cooking, personal hygiene, and public transportation. Which is fine if your child has severe cognitive delays and needs extra help in these areas. But Katie has average to high intelligence and no self-help delays. No matter how you slice it, a life skills class is not an appropriate placement.

Until then my primary strategy had been to keep Katie in her current school district and avoid transferring back to our home district. But if the only option was a wildly inappropriate life skills class, then I needed to alter my strategy. Since then I’ve been pondering my options: private school, charter school, or home schooling. But where to begin?

Before winter break I received a thick manilla envelope from Ms. Nav. Inside I expected to find a mandatory progress report. Instead I found the goals from our previous IEP listed next to the words: goal not approved. I hadn’t signed the IEP because I wanted a more rigorous reading program implemented for Katie similar to what Katie’s reading tutor had been successfully using at home. The school refused. So I didn’t sign. But unlike other school districts, this one simple shrugged and did nothing. I knew at some point the stalemate would have to end, but I had not predicted this.

Instead of progress on the current, unsigned goals, the teacher had reported on the previous year’s goals. And sadly, many of the goals still had not been met—most notably in speech and reading.

broken-pencil-schools-jpg_021534To say I was livid would be an understatement.

Much of December and January was spent at home, nursing my thumb back to health. While I was soaking and wrapping my throbbing digit, I pondered my IEP dilemma. This district’s M.O. was to stonewall until parents signed. I knew from previous experience that quoting the law wouldn’t alter anything. How could I change the script?

Eventually it dawned on me that I needed to find a win-win solution just like I had back in the days when I negotiated environmental permits. I wasn’t sure how to do that with a school district, but I could certainly change my tone. So at the IEP meeting I started by telling the school personnel that while I loved the district and was thrilled that they had been willing to take Katie, I was surprised and dismayed to see that no work had been done on the goals that we had all agreed to last year and that there were goals from a year earlier that were still unmastered. Therefore, the district was not only out of compliance, but could not show progress. They hadn’t even completed two of the three mandatory progress reports! I hoped to work with them in a collaborative fashion, but I would not wait another year. Either we signed an IEP, or I would file for due process.

The school personnel shifted in their seats, and someone mumbled that of course they wanted to work with me. Then they projected Katie’s current benchmarks on the wall. Amazingly, several tasks Katie had not mastered in late November were now mastered only a few school weeks later. We slowly worked through the report. Then the teacher presented the proposed goals for the coming year. Given what had been proposed two years earlier, and then again last year, the goals made no sense. It was as if another child’s goals had been mistakenly presented. When I pointed this out, staff grumpily said these were appropriate goals.

For whom, I asked. A child in the middle school life skills program?

Yes, they answered.

I reminded them that goals were supposed to drive the placement, not the other way around. If goals were appropriate for Katie in 2014, then they were still appropriate. I suggested we return to those goals. The teacher insisted we keep her proposed goals. I agreed to keep those along with the others. The program specialist asked if I would sign off on the proposed goals. No, I said sweetly, I’d like to see a consolidated set. Did she want to schedule a follow-up meeting?

To be continued….

Until next time,
Cynthia Patton

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